Monday, May 11, 2009

National NF Awareness Month

As part of NF Awareness month, celebrity doodles will be available for auction on eBay! NF (Neurofibromatosis) is more common than Cystic Fibrosis, Muscular Dystrophy and Huntington's Disease combined. Funds raised from the Doodle Day auction will go to support education, advocacy, coalitions, and research for treatments and a cure.

Visit the Children's Tumor Foundation at http://www.ctf.org/ to get more info on Neurofibromatosis

For those of you that didn't know, Jackson has NF. Right now, it's more of a watch and see type thing. But, he does have dozens of cafe-au-lait spots and over the past month has grown several neurofibromas so it's off to the specialist we go! We'll keep you all updated...

1 comment:

  1. What level does he have: NF1, NF2 or Schwannomatosis? Are you in a support group?

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